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Current Results:

Those surveyed to date.

  • Number of people taking part: 652 (438 Male, 157 Female, 57 Unknown)
  • Average age at diagnosis: 33 years
  • Average age at first symptoms: 24 years
  • Time delay from symptoms to diagnosis: 9 years

Quote: Effects Flares have on your life

On my worst days, when I can do nothing at all, I feel better by being horizontal.